Data Use Register

The data use register is a summary of the research projects that have been given approval to use health data through the West Midlands Secure Data Environment.

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Our Data Use Register shows how researchers are using data, so that patients and members of the public can feel confident that their data is only being used in the correct way and for the correct reasons; it also helps researchers understand the type of health information the SDE holds.

Approved projects have been reviewed by our data access committee (DAC), to ensure that all research which uses data through the West Midlands SDE, is in the public interest and carried out in the correct way. Exceptions to this, are data projects which are supported under a different legal framework.

The current version of the Data Use Register (DUR) is set as a beta stage release and this has been co‑developed with users and members of the public, which is ongoing. Collaboratively, we are working to optimise the DUR and this will continue into 2026/27.

Click on the project title below and to reveal further information such as, lay summary, public benefit statement and dataset name.

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Project title
Legal Name of Contracting Organisation (Trading Name)
Date of signed agreement
Access type
Link
Lead applicant organisation
University Hospitals Birmingham NHS Foundation Trust
Latest approval date
03/06/2025
Access type
West Midlands SDE trusted research environment
Link
Not yet published.
Lead applicant organisation
University of Birmingham
Latest approval date
23/05/2025
Access type
West Midlands SDE trusted research environment
Link
Not yet published.
Lead applicant organisation
Black Country Integrated Care Board 
Latest approval date
20/03/2026
Access type
West Midlands SDE trusted research environment
Link
Not yet published.
Lead applicant organisation
Coventry University 
Latest approval date
04/11/2025
Access type
West Midlands SDE trusted research environment
Link
Not yet published.
Lead applicant organisation
University Hospitals Birmingham NHS Foundation Trust
Latest approval date
09/07/2025
Access type
West Midlands SDE trusted research environment
Link
Not yet published.
Lead applicant organisation
Johnson & Johnson
Latest approval date
30/01/2025
Access type
West Midlands SDE trusted research environment
Link
Not yet published.
Lead applicant organisation
University of Birmingham
Latest approval date
18/08/2025
Access type
West Midlands SDE trusted research environment
Link
Not yet published
Lead applicant organisation
University of Birmingham
Latest approval date
18/08/2025
Access type
West Midlands SDE trusted research environment
Link
Not yet published

The following projects have been processed and supported by the West Midlands SDE but were not reviewed explicitly by the DTC due to the projects being supported under a different legal framework

Project title
OWKIN MSI Gastric Cancer
Lead applicant organisation
Owkin
Latest approval date
16/08/2024
Access type
West Midlands SDE trusted research environment
Link
Not yet published.
Lead applicant organisation
NHS Blood and Transplant
Latest approval date
27/10/2023
Access type
West Midlands SDE trusted research environment
Lead applicant organisation
Owkin
Latest approval date
01/09/2023
Access type
Data Access Provided
Lead applicant organisation
Owkin
Latest approval date
04/06/2023
Access type
Data Access Provided
Link
Owkin
Lead applicant organisation
Seon Diagnostics Ltd
Latest approval date
18/11/2022
Access type
Data released under Data Licensing Agreement to a secure Trusted Research Environment provided by the University Hospitals Birmingham as the NHS Data Controller. Data Use Application 005
Link
Not yet published
Lead applicant organisation
Sandwell and West Birmingham NHS Trust
Latest approval date
27/12/2024
Access type
West Midlands SDE trusted research environment
Link
Not yet published
Lead applicant organisation
University Hospitals Birmingham NHS Foundation Trust
Latest approval date
12/11/2024
Access type
West Midlands SDE trusted research environment
Link
Not yet published
Project title
IPF Dataset
Lead applicant organisation
Qureight
Latest approval date
29/03/2023
Access type
Data Egress via SFTP
Link
Not yet published