Data Use Register

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The data use register is a summary of the research projects that have been given approval to use health data through the West Midlands Secure Data Environment.

It shows what researchers are doing with the data so patients and members of the public can feel confident it is only being used in the right way and for the right reasons.

It also helps researchers understand the type of health information the SDE holds.

Approved projects have been reviewed by our data trust committee (DTC) to ensure research using data through the West Midlands SDE is in the public interest and carried out in the right way. Exceptions to this are data projects that are supported under a different legal framework.

This data use register is currently in development and does not represent a full list of current or completed projects.

Click on the project title for more information, including lay summary, public benefit statement and dataset name.

Project title
Lead applicant organisation
Latest approval date
Access type
Link
Lead applicant organisation
Johnson & Johnson
Latest approval date
03/12/2024
Access type
West Midlands SDE trusted research environment
Link
Not yet published.
Lead applicant organisation
Keele University
Latest approval date
06/01/2025
Access type
West Midlands SDE trusted research environment
Lead applicant organisation
University of Birmingham
Latest approval date
04/11/2024
Access type
West Midlands SDE trusted research environment
Link
Not yet published
Lead applicant organisation
University of Birmingham
Latest approval date
04/11/2024
Access type
West Midlands SDE trusted research environment
Link
Not yet published

The following projects have been processed and supported by the West Midlands SDE but were not reviewed explicitly by the DTC due to the projects being supported under a different legal framework

Lead applicant organisation
NHS Blood and Transplant
Latest approval date
25/07/2024
Access type
West Midlands SDE trusted research environment
Lead applicant organisation
Owkin
Latest approval date
01/09/2023
Access type
Data Access Provided
Lead applicant organisation
Owkin
Latest approval date
04/06/2023
Access type
Data Access Provided
Lead applicant organisation
Seon Diagnostics Ltd
Latest approval date
18/11/2022
Access type
Data released under Data Licensing Agreement to a secure Trusted Research Environment provided by the University Hospitals Birmingham as the NHS Data Controller. Data Use Application 005
Link
Not yet published
Lead applicant organisation
Sandwell and West Birmingham NHS Trust
Latest approval date
27/12/2024
Access type
West Midlands SDE trusted research environment
Link
Not yet published
Lead applicant organisation
University Hospitals Birmingham NHS Foundation Trust
Latest approval date
11/07/2024
Access type
West Midlands SDE trusted research environment
Link
Not yet published
Project title
IPF Dataset
Lead applicant organisation
Qureight
Latest approval date
29/03/2023
Access type
Data Egress via SFTP
Link
Not yet published