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Patient and Public Advisory Group vlogs

In this series of video logs, or vlogs, members of our Patient and Public Advisory Group (PPAG) explore different aspects of the West Midlands SDE from a patient and public point of view.

Patient and Public Involvement, Communications and Engagement

PPAG member James Whitaker, in discussion with the SDE’s Patient and Public Involvement, Communications and Engagement workstream co-chair, Charlie Wonders.

Information Governance

Keith Fielding joins Information Governance Officer, Stephanie Kabare, to look at the protocols protecting people’s data.

Consent, opting out and data quality

Ernest Green meets with Professor Liz Sapey, co-chair of the SDE’s Information Governance and Ethics workstream. They talk about how consent and opt outs work in relation to the West Midlands SDE, as well as how the team ensures data is of a high quality.

Achievements and next steps for the SDE

Senior Responsible Officer, Professor Simon Ball, talks with PPAG member Ruth Hereford about the SDE’s successes so far and plans for what comes next.

Being a member of PAAG

PPAG member Joe Ndilla sits down with engagement and consultation consultant, Andrea Clark, to reflect on what it’s like to be part of PPAG.

Animations

Patient data saves lives: The bigger picture

This animation from research, policy and advocacy organisation, Understanding Patient Data, explains the importance of health data, how it is used and how it is looked after in our health and care system.

Using Patient Data for Research – What is a Secure Data Environment?

The animation below explains how secure data environments work and the benefits they provide. It also looks at who can use health data through an SDE and the security measures involved.

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